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About

Community – Love – Encouragement – Family – Trust (C-L-E-F-T)©

The mission is to educate and bring awareness to others around the world whose lives are touched by cleft lip and or/ palate and other Craniofacial anomalies by providing Support, Education, Advocacy, and Research.

The vision of the Cleft Lip & Palate Foundation of Smiles is to provide support for individuals and families with cleft lip and/or palate and other Craniofacial anomalies.

  • Networking: Connecting and Building Relationships with families for a Lifetime
  • Educating: Providing Guidance
  • Advocating: Promoting Support
  • Researching: Collecting & Providing Information

We began our organization in 2009. Rachel Mancuso, a parent to twins both born with a Cleft lip & Palate in October of 2008, started the Cleft Lip and Palate Foundation of Smiles as a community for families that were going through similar challenges. Programs we support include:

In 2010, we createdThe Cleft Lip & Palate Foundation of Smiles on Facebook. Growing to over 14,800 members for facebook families and still growing.

In 2011, launch of the official Cleft Lip & Palate Foundation of Smiles Website and look forward to becoming a Non profit organization. As we grow we have built a dedicated Board of Directors these individuals donate their time to help develop relationships, maintain the new Web site, help advocate, & gather the latest research.

In 2011, Cleft Lip and Palate Foundation of Smiles filed with the State of Michigan and is Incorporated and the Organization has completed its application for 501(c)(3) designation with the IRS.

In 2011, We launched our  IDEA & IEP Tips – Parents to Parents for Children with Disabilities is a social support group where parents can share tips on obtaining a free appropriate public educations (FAPE) through individual education plans (IEP) pursuant to the Individuals with Disabilities Education Act (IDEA). This is a Program of the Cleft Lip and Palate Foundation of Smiles.

In 2012, Cleft Lip and Palate foundation of Smiles received their Non Profit 501(c) 3. Cleft Lip and Palate foundation of Smiles is a 501(c)3 Tax Exempt Public Charity (#45-2230155)

View our letter of acceptance

IRS Filling Application, Bylaws and All Supporting Documents of the Cleft Lip and Palate Foundation of Smiles

In 2012, Cleft Lip and Palate Foundation of Smiles provides a business contact number  for our patients and families.  616-329-1335

In 2012, we have launched our CleftSmile.org  craniofacial Magazine for our patients and families around the world.

In 2012, we launched our craniofacial newsletter for our patients and families.

In 2013,  Rachel Mancuso created a special feeder for patients and families born with facial differences, we hope to bring this special feeder to our families by late 2017 too early 2018

In 2013, we decided to create a online mobile to mobile directory of our preferred and referred medical providers for our patients and families.

In 2013, we have mailed our 200 plus special feeders to families in need from our supporting program called Weimer Bottle Fund.

In 2014, we launched our Online CLAPFOS store. We sell T-shirts, Hats, Awareness bracelets and so much more.

In 2014, we have mailed out over 156 special feeders to families in need from our supporting program called Weimer Bottle Fund.

In 2014, we launched our CLAPFOS online store. CLAPFOS online store.

In 2015, our social media page on Facebook has reached over 39,000 patients, families and supporters and we are growing daily.

In 2015, Rachel Mancuso created and founded our new therapy program for our patients and families. The foundation will be offering two therapy service dogs to our patients and the community. We look forward to seeing this program bring our patients and families  emotional support, hope and tons of smiles for years to come. Lady and Lucy joined the foundation program in October, 2015.

In 2015, we have mailed our to date 236 special feeders to patients and families in need with our supporting program called Weimer Bottle Fund.

In 2015,we launched a new service by providing information from the FDA, CDC on Medications related to Birth Defects.  Our Research and Medication PDF’s. We help our patients and families if they have taken possible medications related to their child’s birth defect. We work with our patients and families and have our legal team help our patients and families. We provide all information that is provided by the FDA and CDC and all studies related to certain medications. Please refer to our Research & Medication PDF’s: Research and Medication PDF’s

In 2015, we decided to start making gift baskets to our patients who are having surgery. This program will be molded to our program call Bring a Smile. We are collecting Toys, Books, goodie bags and helpful items to families that stay overnight in the hospital.- This program was founded by Rachel Mancuso CEO

In 2015, we decided to added NEW items and NEW designs to fit all our patients and families needs, we are in the process of making these changes and looking to bring by late December 2015 or early January 2016. CLAPFOS online store  CLAPFOS online store

In 2016, we continue to raise awareness and help patients and families born with facial differences, we help support families in need at hospitals and patients in treatment.

In 2016, we have partnered with Meijer’s in Grand Rapids, Grandville, Kentwood and Standale Michigan with our Annual Toy Drive to our local Hospital(s) Helen DeVos Children’s Hospital. We have been able to help over 200 plus families.

In 2016, we have help over 2,000 patients and families in need with special feeders at hospitals with children born with facial differences. ( Haberman, Pigeon Bottles, Medela Bottles, Special Sippy Cups) and other medical feeder devices in need. This is a program part of our Weimer Bottle Fund Program.

In 2016, we have reached and help support over 41,349 patients and families, we provide ongoing support with resources, funding with our supporting foundations programs.

 

 

 

 

 

 

 

 

 

 

 

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Site last updated December 5, 2016 @ 3:07 pm; This content last updated December 5, 2016 @ 2:53 pm