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Author Archives: Rachel

fAppropriate postnatal care is essential after any child’s birth, and that’s especially true if your baby was born with an orofacial cleft. We’ve outlined the most common forms of treatment, including surgical repair and ongoing therapies, on our “Treating Cleft Lip & Palate” page, but we haven’t yet broached the subject of paying for these services, which are often more expensive than those that babies born without congenital defects require. Health Insurance & Orofacial Cleft Coverage

by Rachel

Speech Buddies are a set of revolutionary tools to help children overcome speech difficulties. By teaching correct tongue positioning for the five most difficult sounds – R, S, L, CH, and SH. Proven to work 2-4 times faster in numerous clinical trials.  Speech Buddies works best when introduced after surgery to close the cleft is complete. Speech Buddies have proven to be very helpful with children who have struggled with articulation due to cleft palate.  Take a moment and [...]

by Rachel

My pregnancy with Gabrielle wasn’t “magical” like everyone told me it would be. I actually didn’t even think I could have children. I had a lot of tough days that I didn’t think I was going to get through while pregnant. During my second sonogram the ultrasound technician found that Gabby had a Single Umbilical Artery. That meant we had to see the Perinatalogist monthly and have weekly sonograms done to check her growth and [...]

by Rachel

When I first found out I was pregnant AGAIN I was immediately stressed out. At the time my daughter was only seven, and I had just had a baby boy who, at the time, was only four months old. I wondered how I was going to juggle an extra infant into our family equation when I was already extending myself so much with just the two children I had. It was a lot to take in, but I knew in [...]

by Rachel

Our son, Patrick Cole Lucas was born less than 6 weeks ago, and has been our blessing and joy since we found out we were pregnant. We found out at the 22 week old ultrasound that he would be born with a cleft lip and palate. Having, had 2 prior typical pregnancies,this news came as quite a shock. However, the doctor let us know that this is the most common birth defect and can be fixed easily by a [...]

by Rachel

We found out that Edmund was going to be born with a cleft lip and palate at our first OB appointment after our anatomy scan on December 7, 2010. I remember the day like it was yesterday. We went to the appointment like any other appointment not expecting to hear anything like this. I remember him asking what we were told at the anatomy scan. We told him about being told we were having a boy and that everything looked [...]

by Rachel

Sharing difficult experiences in life is a wonderful way to create support and community for those going through similar trials, whether it is through community outreach or as you have done online. I found your facebook group and web page along with other online bloggers to be very uplifting in a trying time with my son Josiah. Thank you for your efforts and providing a place for individuals and families dealing with cleft to turn to, and thank you for [...]

by Rachel

I was born with cleft lip and as far as I know I am the only one with it. I always thought none of my kids will ever be born with that, Until November 5, 2010, My little son I had wanted my whole life came into this world after about an hour of all natural hard labor 8lbs 2oz 19 inches long and he came out and to my surprise he had cleft lip. I had an [...]

by Rachel

Thomas's Smile Well; My Son Thomas Lee Wallis; Is An Incredible child; To me my family and everyone who hears his story…….. At 28 weeks of pregnancy it was confirmed that our Son would be born with a Cleft Lip and Palate; As well he has enlarged Ventricles; So I returned to Valley Children’s Hospital for more Ultra Sounds MRI and testing. After all testing and research I was sent to Stanford‘s Lucile Packard Children’s Hospital in Palo Alto CA; [...]

by Rachel

The Cleft Lip and Palate Foundation of Smiles is coming together asking our wonderful Patients and Families to support the ” National Craniofacial Acceptance Month” This is dedicated to all our Craniofacial Families. We are asking our Patients and Families to help show support, There are many great ways to reach out and bring that wonderful Awareness to others.     Learn how you can get more involved with the National Craniofacial Acceptance Month. Come and Join us on Facebook [...]

by Rachel