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Cleft lip or palate is one of the most common birth defects, affecting one in 500 children in the US. Unless treated cleft palate can interfere with feeding, speech development and hearing.

by Rachel

In a study newly published in the journal Development, investigators at the USC School of Dentistry describe how to non-surgically reverse the onset of cleft palate in fetal mice

by Rachel

An international consortium of scientists, led by researchers at Johns Hopkins University has identified two genes that when altered are closely associated with cleft lip and/or cleft palate. Cleft lip and cleft palate are among the world’s most common congenital malformations and occur in one in every 700 births. The finding is the result of the largest family-based, genome-wide study of cleft lip and/or cleft palate conducted to date. The results were published online by the journal Nature Genetics. The [...]

by Rachel

Preparing questions in advance for your family can be helpful. So you have a  more meaningful discussions with your physicians regarding your child’s Craniofacial treatment options. The following questions related to cleft lip and palate may be helpful for your family. Bring a Note Pad/ Pen to take down information your team shares with you about your child. So you can look back on all your notes, It is alot of information.  Take your time, if you don’t understand what your team is [...]

by Rachel

NAM is a technique in which the alveolus (gum ridges) and/or nose are molded with an appliance similar to an orthodontic retainer. This is usually done by a specially trained orthodontist prior to surgery, in order to make surgery simpler. The baby wears the appliance 24 hours a day for a period of weeks or months. It does not interfere with feeding or breathing for the baby. Did your child have this done, was it successful for your child to [...]

by Rachel

Find you Craniofacial Team Today! Craniofacial Team Listings   Craniofacial Foundations and listings around the world. If you would like to have your Foundation listed on our Site, Please contact Rachel Mancuso @ rachel@cleftsmile.org     Face It (New Zealand) operation Smiles Italy Alliance for Smiles Wide Smiles National Foundation for facial Reconstrution Crainfacial Society Ireland Pakistan Cleft Lip and Palate Projects of Ethiopia   China Resources Faces of Hope China Welfare [...]

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Cleft is a congenital deformity caused by a failure in facial development during pregnancy. Cleft lip and cleft palate, which can also occur together as cleft lip and palate are variations of a type of clefting congenital deformity caused by abnormal facial development during gestation. This type of deformity is sometimes referred to as a cleft. A Cleft is a sub-division in the body’s natural structure, regularly formed before birth. A cleft lip or palate can be successfully treated with surgery soon [...]

by Rachel

Acknowledge your emotionsIt is normal to feel many different emotions, especially when you first find out.  Parents often experience shock, denial, grief, and even anger at any given time.  Everyone handles things in their own way, and that is okay! Acknowledge your feelings and give yourself permission to mourn the loss of the child you thought you’d have. Talk about your feelings with your spouse or partner.  It is also important to reach out to other family members and friends.  You [...]

by Rachel

This New Gene Test Reported for Isolated Cleft Lip and PalateThis article was provided by the National Institute of Dental and Craniofacial Research (NIDCR) Researchers report they now can predict whether some parents are more likely than others to have a second child with the “isolated” form of cleft lip and palate, one of the world’s most common birth defects, according to results of a study published last month in the New England Journal of Medicine. The authors say their latest gene test applies [...]

by Rachel

BackgroundWith any surgical reconstruction, one must take into consideration many factors that affect overall satisfaction in terms of functional and aesthetic results. The lip is no exception. Functionally, the lips serve as borders of the oral commissure, providing adequate access to the oral cavity and contributing to oral competency. Aesthetically, the lips are the focal point for verbal expression and are fundamental to the overall appearance of the face.History of the ProcedureLip reconstruction is not a [...]

by Rachel
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