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fAppropriate postnatal care is essential after any child’s birth, and that’s especially true if your baby was born with an orofacial cleft. We’ve outlined the most common forms of treatment, including surgical repair and ongoing therapies, on our “Treating Cleft Lip & Palate” page, but we haven’t yet broached the subject of paying for these services, which are often more expensive than those that babies born without congenital defects require. Health Insurance & Orofacial Cleft Coverage

by Rachel

Preparing questions in advance for your family can be helpful. So you have a  more meaningful discussions with your physicians regarding your child’s Craniofacial treatment options. The following questions related to cleft lip and palate may be helpful for your family. Bring a Note Pad/ Pen to take down information your team shares with you about your child. So you can look back on all your notes, It is alot of information.  Take your time, if you don’t understand what your team is [...]

by Rachel

NAM is a technique in which the alveolus (gum ridges) and/or nose are molded with an appliance similar to an orthodontic retainer. This is usually done by a specially trained orthodontist prior to surgery, in order to make surgery simpler. The baby wears the appliance 24 hours a day for a period of weeks or months. It does not interfere with feeding or breathing for the baby. Did your child have this done, was it successful for your child to [...]

by Rachel

Get organized, Be PreparedKeep notes in a notebook on everything as it progresses Get a large set of manila folders so you can divide up the insurance Explanation of Benefits by provider and organize from then on. Write up a list of the various providers, their phone numbers, their addresses, and their office hours. Make copies of your and your child’s insurance cards. Great to have extra on hand.Working with medical providers and insurance companies:All conversations with providers should be polite and [...]

by Rachel

Preparing questions in advance can help parents have more meaningful discussions with their physicians regarding their child’s treatment options. The following questions related to cleft lip and palate may be helpful to you and your family.How severe is my child’s cleft? What other problems is my child likely to experience due to his/her cleft? What specialists will be involved in my child’s treatment? Will my infant require special feeding methods? What surgeries will my child need to treat his/her cleft? At what age can the [...]

by Rachel
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